While Americans were focusing on their
election, matters in the United Kingdom Parliament turned to Adult Polycystic Kidney
Disease. Madeline Moon, Labour MP for Bridgend had been successful in the
speakers’ ballot and chose Polycystic Kidney Disease as the topic for the ‘End
of Day Adjournment Debate’ on Tuesday
6th November 2012.
Anna Soubry, the Parliamentary
under Secretary of State for Public Health congratulated her honourable friend
on securing the debate and paid tribute to the excellent work undertaken by the
Polycystic Kidney Disease charity. Anna
Soubry went on to emphasise the importance of raising awareness of Chronic
Kidney Disease, commenting that although 2.3 million people are now on primary
care registers for CKD in England
there is more work to do. She underlined the importance of research, citing the
three studies, which are being hosted by the National Institute for Health
Research, and drawing MPs attention to the TEMPO (Tolvaptan Efficacy and Safety in Management of Autosomal Dominant Polycystic Kidney Disease)
reported at the American Society of Nephrology meeting in San
Diego last week.
The Minister concluded by speaking
about the importance of the quality of life in people with chronic kidney disease.
Drawing attention to the Quality Standard for CKD published last year by NICE, which clearly states that patients with a genetic family history of Polycystic Kidney
Disease should have access to specialist care, and support to optimise their
quality of life and clinical outcomes.
1 comment:
Thanks Donal to you and your team for supporting the work of the PKD Charity and this debate.
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